#VoiceYourLove is a campaign to raise awareness for ALS and one of its many debilitating symptoms: losing the ability to speak.
We’re on a mission to uncover a cure while serving, advocating for, and empowering people affected by ALS. We challenge you to get involved by making a donation and voicing your love for those important to you.
“The loss of my sister drove me to do something meaningful in the fight against ALS,” says Frank Bailinson, director of product management at BitTorrent.
Today, we at TRON and BitTorrent are happy to join Bailinson in that fight. We’re serving as proud sponsors for a remarkable awareness and fundraising campaign called #VoiceYourLove. In conjunction with The ALS Association, we’re joining our voices in the effort to end the deadly effects amyotrophic lateral sclerosis, also known as Lou Gehrig’s disease.
Rather than directing his loss inward, Bailinson is the inspiration and guiding hand for a collaboration between ALS, BitTorrent and TRON that would raise awareness of the always-fatal disease and create a donation drive to help causes working to find a cure.
“When I presented the idea of using the 100 million-plus BitTorrent and TRON community to do an awareness and fundraising campaign, it received great internal support,” Bailinson says. “I immediately reached out to The ALS Association in Washington, and over the next six months, we developed a close relationship that ended up by conceiving the VoiceYourLove concept.
Kicking off in time for Valentine’s Day celebrations of love and affection, #VoiceYourLove challenges people to use their phone or tablet to create a video expressing love for people who’ve been meaningful to their lives – whether that’s family, friends, colleagues or even strangers. For those who wish to donate, voiceyourlove.org is the official campaign website.
We’ve already attracted support from Renée Zellweger and Courteney Cox and expect more will come onboard. Over the next several days, we will be reaching out to our community through all the channels we have available.
We also are launching a special ALS version of BitTorrent Web that features the celebrity videos, and we are engaging users inside our popular Windows desktop client and Android application to spread the word.
Justin Sun, CEO of BitTorrent and founder of TRON, is donating $250,000 to advance ALS research. He’s challenged people with means in the blockchain and tech industries to do the same.
Says Bailinson: “It’s Valentine’s Day this week, and I know that many people diagnosed with ALS often lose their ability to speak. Now’s the time to speak for them – and to speak out in support of a great cause like curing ALS. I’m doing my part to honor my sister and her memory, and I hope you can join me in doing the same by being a part of #VoiceYourLove.”